Wednesday, January 19, 2011

CCSVI Alliance Update

The debate continues regarding the relationship between chronic cerebrospinal venous insufficiency (CCSVI) and multiple sclerosis. Almost every day, some scientist or doctor speaks about or publishes something about this theory. Depending on your bias, you might conclude that the theory is either gaining acceptance or is losing steam. But one fact that seems indisputable is that CCSVI is getting more and more attention.

As you may know, I volunteer a bit for CCSVI Alliance. Their mission is:
CCSVI Alliance promotes education and research about CCSVI and its
relationship to Multiple Sclerosis (MS) by providing objective information
to the MS community, supporting medical investigations of CCSVI, and
fostering collaboration among patients, advocates, and professionals.
iset2011BannerThis week their president, Sharon Richardson, was invited to participate in the International Symposium on Endovascular Therapy (ISET), a conference attended by approximately 700 physicians from around the world. The conference publishes a daily newspaper of sorts, and mentioned us on the front page of the two issues below.

http://www.iset.org/files/content/docs/issue_2_LR.pdf
http://www.iset.org/files/content/docs/issue_3_LR.pdf

The CCSVI discussion at ISET has also been picked up by the other medical news sources, such as this one

Sharon reported back that CCSVI is THE hot topic at the conference this year. If you are not yet familiar with CCSVI, or if you want to see the latest information, please visit their website at http://www.ccsvi.org/.

Whether you are a proponent or a detractor, or are simply waiting for more information, I hope we can all agree that MS patients deserve to have this theory completely vetted. Dismissing it out of hand would be a terrible injustice, and perhaps an opportunity lost.

For my previous posts on CCSVI, click here.

2 comments:

  1. Thank you for the work you are doing on this.
    Judy

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  2. This is so exciting! All of the hard work of the Alliance BOD is really hitting pay dirt. You all are an incredibly dedicated group. Thank you, thank you for all you do, and have done to publicize and legitimize the CCSVI theory.

    I am proud and honored to support you!

    Nicole

    ReplyDelete