Wednesday, April 14, 2010

A Web Forum on CCSVI and What it Could Mean to People Living With MS

There was an interesting CCSVI web forum today, hosted by the National Multiple Sclerosis Society (NMSS) and the American Academy of Neurology (AAN).  The panel convened at the AAN 2010 Annual Meeting in Toronto.  To view a video of the forum, click here.  To read a summarry of the forum, click here

The panel consisted of:
Dr. Paolo Zamboni, Director, Vascular Diseases Center, University of Ferrara, Italy

Dr. Robert Zivadinov, Associate Professor of Neurology, University of Buffalo, State University of NY

Dr. Andrew Common, Radiologist in Chief, St. Michaels Hospital, University of Toronto, Ontario, CA

Dr. Aaron Miller, Professor of Neurology & Director of the MS Center at Mount Sinai, NY, member of the AAN Board of Directors, Chief Medical Officer of the National MS Society
I found the forum to be helpful at times, and condescending at other times.  So, it was exactly what I expected.  What did you think of it?


  1. I really thought it was a positive event for CCSVI in general. Its going to be an uphill battle for sure to overturn decades of previously accepted autoimmune theory. I especially found interesting the part about CCSVI effecting CSF dynamics, and Zamboni's call for neuroimmunologists to study this being a possible way for virus/bacteria to cross the BBB and cause damage. CCSVI causes some symptoms and opens the door for dormant virus to cross the BBB? It makes sense.

  2. Hiya i am fresh to this, I came upon this forum I find It exceedingly useful & its helped me alot. I hope to contribute & guide other people like its helped me.

    Cheers, Catch You About.