Tuesday, February 9, 2010

Quick Update


Wednesday, February 10, will be an important day for the MS world.  This is the day that the Buffalo Neuroimaging Analysis Center (BNAC) will announce results from the first 500 patients in their CCSVI study.  And, as I wrote in my previous post, all indications are that these results will be game changing.  I’m pretty much keeping this channel open for CCSVI news in the next few days.

For those of you who actually enjoy my babble about life as a disabled person, I’ll get back to that soon enough. 

There is one other issue that I will quickly address here. Since I stopped working in May 2009, and time has become an abundant commodity for me, I have connected with a group of people that I may not have otherwise connected with. Because of blogs, Facebook, Twitter, and sometimes even good ole’ email and telephone, I am now in touch with a network of MS patients and advocates like never before.

One of my new MS friends is better known as the Wheelchair Kamikaze.  His blog was one of the first I ever read.  When I began to envision Enjoying the Ride, I contacted Marc to learn about the world of MS blogging. He immediately opened up, gave me advice, and helped me get up and running.  I continue to correspond with Marc on a variety of MS and Red Sox issues.  Poor bastard is a Red Sox fan living in Manhattan.  Brave soul. 

To me, his blog remains the gold standard for medical patient blogs- heck, for all blogs.  He has become, in some senses, the de facto spiritual leader of the online MS community, but in a wholly nonreligious way. His blog has been nominated for "Best Patient's Web Log." Please give it a read, and if you agree with me go to this website and vote for Wheelchair Kamikaze. Sure, if you are one of those old fashioned voters who needs to consider all candidates before making a decision, go ahead and look at the other choices.  But if you are pressed for time just trust me.  Wheelchair Kamikaze kicks ass. 

The MS community is really pulling for Marc to win.  Thanks in advance for your vote. Note that you can only vote once per computer.

7 comments:

  1. Wow – Two curse words in the same posting. I’ve read every one of your previous postings and I can’t remember you swearing even once. Actually I did check and you do drop one occasionally. I have to admit, it’s refreshing! Seriously now, Marc is a fantastic writer and a beautiful human being. He has a wonderful mind and an incredible spirit. Best of all he’s funny. In the midst of all of this heartache and misery he always seems to come with something that brings a smile to my face and a chuckle in my heart. Marc – You certainly have my vote for best patient blog.

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  2. Mitch,
    Thanks for pointing this out. Yes, my vote is in!
    Peace,
    Muff

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  3. Thanks for the advice Mitch - my vote is in. Mr Wheelchari Kamikaze is leading with 41% if the vote. Look forward to learning of the results on Feb 10th.

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  4. Hi,
    did I miss the link to this wonderful Wheelchair Kamikaze? Oh well, looks from Scott that the race is over?

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  5. Thanks to everyone who has visited this page, and who has voted for Marc. My page traffic monitor shows a lot of hits from all over the world. It's not in the bag yet though. Marc's primary competitor has diabetes, and, well, there are a lot more of them then there are of us.

    imascatterbrain, I have hyperlinks to Wheelchair Kamikaze in the 4th and 5th paragraphs. Just click on the word "blog" that is underlined and in blue, or go to www.wheelchairkamikaze.com. There is a link to the voting from there.

    The race is not over!

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  6. thanks for spreading the good word about Marc's blog...

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