Thursday, February 4, 2010

CCSVI - Get ready for the craziness to begin.

The Buffalo Neuroimaging Analysis Center (BNAC) is beginning to drop some not-so-subtle hints about the trial results they will release in mid February.  Dr. Robert Zivadinov, MD, PhD, wrote in his newsletter:
"We believe our CCSVI studies testing Dr. Paolo Zamboni’s controversial CCSVI theory will result in groundbreaking discoveries in the field of MS."
Dr. Zivandinov further states:
"I speak for the entire BNAC-JNI research team and Dr. Bianca Weinstock-Guttman to let you know that this particular research is having an impact like no other we have known."
Click here for a link to the newsletter. 

As more evidence of how well things are progressing at BNAC, they have announced a program to provide comprehensive CCSVI diagnostic testing, at two levels.  The CORE package costs $4500, and the ADVANCED package costs $6000.  Insurance companies will almost certainly not pay for this testing...yet.  Here is a link if you are interested in being tested for CCSVI at BNAC.

And finally, BNAC will be proceeding with a small study of actual treatment for correcting CCSVI. If you are interested in participating in this study, click here

I've written two earlier posts about CCSVI.  To read them, click here and here.

4 comments:

  1. Thank you for keeping us up to date on this.
    Judy

    ReplyDelete
  2. I, too, received the newsletter, and also noted that Dr. Z informed his readers that they are not giving any of the treatments that the other Dr. Z gave in Italy. I'm trying not to get caught up in all of it until it's a proven therapy, but it's hard not to hope that this may be the one.

    Peace,
    Muff

    ReplyDelete
  3. Judy and Muffie,

    I know that all the worldwide guru's on CCSVI are meeting in Ontario tomorrow. I'm hopeful that BNAC will talk about their results at that meeting.

    ReplyDelete
  4. Thank you for the link. I registered as soon as I saw it.

    I live several hours drive from Buffalo so a trip there would entail an overnight stay. I looked into going for the initial study to find out if I even have a constriction. I thought it would definitely be worth the hassel & expense until I read that they won't give the patients or their doctors the individual results.

    It's nice just getting in their database as a possible future candidate. I don't have any hope that I'll be one of the first 30. That would be like winning the lottery & we all know the probability of that happening.

    I'm quite excited about this research but as with everything else, I can't imagine that it will help PPMS. Pessimistic me. However, I would be super happy to see good results for people with RRMS.

    ReplyDelete